After several months of development, and input from many sources (Patient Advocate Robin Martinez and Drs. James Hsieh, Sandy Srinivas, James Leppert), we have now released a clinical trial search tool for rare kidney cancer. Check it out and let us know what you think,
RareKidneyCancer.org launched today. It was conceived at the Kidney Cancer Association meeting in November 2015 at Miami Bay Biscayne. There, with the kind permission of the KCA organizers, we were able to approach physicians at the conference and ask one question "What is the biggest bottleneck in creating new treatments for rare kidney cancers"?
Due to their small population, few resources and fewer clinical trials are devoted exclusively to patients with rare kidney cancer (also call "non clear cell renal cell carcinoma" or nccRcc).