Spearheaded by Axel Bex and Rachel Giles, a group of rare kideney cancer specialists recently published a definitive peer-reviewed paper "Recommendations for the Management of Rare Kidney Cancers" in European Urology.

Publication of these Recommendations was a key action item of the rarekidneycancer.org group that formed at GUASCO on January 8, 2016.

Next up is creating a public repository for rare kidney cancer data.