Readings
Blog
2018 Kidney Cancer Hackathon: A Patient Perspective
(in response to a question from Tony LiVigni here)
Papillary RCC Trials
Kidney Cancer Month 2018: Patient Kidney Cancer Story
(This is the original unedited version written for KCCure)
Forty years ago, MIT accepted me to grad school.
I was a “local boy” raised in Texas, working in my teenage years with my father in refineries in the Houston area. I remember remarking to my Dad, “A whole lot of people die early from kidney cancer in this job”.
Kidney Cancer Month: A Proposal for a Social Network
I discuss the general value of making your tumor and blood data public here. But what am I doing with the public data I can access?
I’m trying to apply the “network effect” to all cancer research.
Kidney Cancer Month: Value of Public Data
After a "High Risk of Recurrence" diagnosis in 2014 for a rare, terminal and untreatable kidney cancer, I was faced with many of the same challenges encountered by so many others with rare cancers. To learn more, I started attending Kidney Cancer conferences, spoke with specialists in the field, and began working with researchers and patient advocates to help expand the scope of their work and
Clinical Trial Search Tool Released
After several months of development, and input from many sources (Patient Advocate Robin Martinez and Drs. James Hsieh, Sandy Srinivas, James Leppert), we have now released a clinical trial search tool for rare kidney cancer. Check it out and let us know what you think,
Nizar Tannir: How do I treat my patients with nccRCC?
The Kidney Cancer Association held a "Survivors' Conference" on Saturday, April 16, 2016 at MD Anderson in Houston.
The KCA also kindly recorded a video (here).
I have reproduced particular slides of interest from Nizar Tannir's nccRCC presentation below:
Determining the appropriate Kidney Cancer Treatment
So what "process" does a doctor follow to determine the appropriate treatment for kidney cancer? I asked Memorial Sloan Kettering's Dr. James Hsieh about this and he sent the attached graphic. For those without 20/40 vision, I describe the graphic here.
Clinical Trials
A discussion of the ins and outs of clinical trials is here. You can research clinical trials using the sites listed below:
