Due to their small population, few resources and fewer clinical trials are devoted exclusively to patients with rare kidney cancer (also call "non clear cell renal cell carcinoma" or nccRcc).
CancerCommons and PatientsLikeMe are two organizations which will take your patient data and make it available for research. In addition, below is a list of companies which will purportedly store and rent out your clinical and genomic data, and then give you a cut of the proceeds. Others are starting up.
