CancerCommons and PatientsLikeMe are two organizations which will take your patient data and make it available for research. In addition, below is a list of companies which will purportedly store and rent out your clinical and genomic data, and then give you a cut of the proceeds. Others are starting up.
Some teams have said that they would like to continue their projects. Below is the list I have heard about plus team leads.
Those interested in joining or creating a group, please contact Bill@rarekidneycancer.org and I'll connect you up.
- Thanks to Alex Feltus for this curated list from James and his own work. Both James and Alex produced this list using data from TCGA.