Due to their small population, few clinical trials are devoted exclusively to nccRcc patients (including papillary, chromophobe and sarcomatoid kidney cancer).
And without trials, there are no treatments.
We are addressing this problem in two steps.
First, by creating (this) site of reliable patient and physician information curated by nccRcc experts from around the world.
Second, we will create a clinical trial registry that aggregates nccRcc patients across institutions and countries. More on this later.