Research Centers of Excellence
Dr. Gabriel G. Malouf MD, PhD provides a good overview of rare kidney cancers at the molecular level for patients and physicians.
Presented at the 2016 GUASCO conference in San Francisco
Topics include FAQs, Kidney Cancer Types. Cancer Biology. and Clinical Trial Lists. A site summary indexed by "Kidney Cancer Type" is below.
Due to their small population, few resources and fewer clinical trials are devoted exclusively to patients with rare kidney cancer (also call "non clear cell renal cell carcinoma" or nccRcc).
Some teams have said that they would like to continue their projects. Below is the list I have heard about plus team leads.
Those interested in joining or creating a group, please contact Bill@rarekidneycancer.org and I'll connect you up.
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